Well, we still have fond memories of yesterday's excellent wheelchair adventure to the Boston Common. When the doctors and nurses on the pediatrics floor heard about our excursion, they were all clearly impressed and surp
rised--I got the distinct feeling that no one has ever gone that far in a hospital wheelchair before. When one of Mady's oncologists, Dr. Mary Huang (left) heard about it, she came to speak with us.
Dr. Huang explained that going outside is fine (with a mask and a wheelchair), and even encouraged, but we really must stay on the hospital grounds. Mady is an inpatient for a reason, she reminded us, and she needs to be at the hospital in case something happens. That completely made sense to both of us, and we promised to stay on the grounds for future outings.
Today we took a shorter wheelchair (and mask) trip... through the lovely hospital courtyard, and around the hospital to a back entrance we had never seen before. It was all new to us, and was a reasonable distance--MGH is a huge facility! It wasn't the Boston Common, but it was still fun.
Mady walked whenever we were inside the building. She said her legs were just a little wobbly, but not too bad. It was great to see her on her feet.
Back to Ellison 1816 for a tuna sandwich, and a scheduled transfusion of platelets for dessert.
Day 14 (cont): Mady and her dad get busted for leaving the hospital grounds...
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10 comments:
Sometimes, ignorance of the law is a very good thing.
Kathy G.
It's fun to get out for a while--i remember Gene"s delight in going out for a smoke. So glad you have a wonderful hospital. My love and prayers are with you all. Aunt Alice
I find myself logging on to see how Mady--and you all--are doing each morning. Thanks for keeping us informed. Little prayers are winging their way to you all.
Was so glad to see that Mady got out on Saturday--what a gorgeous day. Pity the docs and hosital had to issue a reprimand--but they do then to operate on the most cautious side of any decision. But I guess that's their role!
Mady's haircut looks cute. Lovely, in fact.
Sorry Hollis couldn't make it in with the gals on Satuday. Hope you had a good visit together.
Thinking of you all,
xxx, -penelope
We wondered what the headlines were about "Father sneaks kid out of hospital for a lark!" in the morning news. Trey, we are going to have to monitor your age-appropriate activities ... remember, Mady is CLEARLY more mature than you!! And, Chris, you are so strong and insightful... between you and Trey, well, need I say more?
Liz & Matt
Hi Trey it's Jane. I remember one winter day up at Turtle Pond--the pond was covered with ice, and you wanted to go out in the middle of it--Chris was determined to persuade you otherwise, and the girls were cheering you on--so you went, and, as I figured you knew, the ice held up well. Otherwise you wouldn't have gone, right? So I'm not surprised you and M. got all the way to the Common! Cheers.
Ah well, through the courtyard is still cool. And you set a record - how cool is that? I'm glad you're walking inside the hospital, Mady. Because it'll help you stay strong, but I'm no doctor. Well, enjoy your freedom indide the hospital grounds (it is a good reason).
Missing you!!!!!!
~~Stephanie~~
Maddy I am a friend of Daria's (your neighbor) I came to your house years ago with her to babysit you & Julia!! Maddy your room looks awsome! I hope you are getting the treatment you need and get out of there soon! Get well!! Thoughts & Prayers are with you & your family through this hard time!
Love Bridget Lopez
blopez610@hotmail.com
G.P. says--Wow! What a terrific room, decorated by that other terrific granddaughter! XXOO
Hi:
I would always think of you when I saw the book or novelties called MADELINE. I haven't seen you since you were a little one. I will read your progrees daily.
Great Aunt Mary-Venice, FL
Yes, well, you can always live vicariously through me.
Not that I actually know what vicariously is...
Yeah, I'm not sure 'bout that.
I'd volunteer Ginny or Sarah or someone else, but, you know, not the best plan.
=D
(I need a new smiley)
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