To read this blog:

The most recent post is at the top of this page.
If you're new to this blog, and you want to get the whole story in order,
scroll down to the very first post called "Day 0: Our summer ends..."
and then work your way back up to the top.
(Trey's posts are black text, and Chris' are blue text)

Please leave a comment!

Below each post, click on the word COMMENTS to leave a message associated with that post.
You may comment anonymously if you don't have a Blogger or gmail account,
but please leave some clue as to your identity in the message. Thanks!


Some of Mady's quotable quotes


"Mom might like to have that cot"


After Chris spent the first three nights at the hospital sleeping on an uncomfortable reclining chair next to Mady's bed, I spent a night in relative luxury when the nurses found a cot for me. Mady strongly suggested that we keep possession of the cot for mom too.

"Are you just here for your own entertainment?"

Said to me with eyes closed and a sly grin when I changed her TV from a DVD movie to the Red Sox - Yankees game on Friday night after I thought she fell asleep. She did let me watch the game.

"I need to go to the bathroom"

Madeline never had to pee very often before, but to keep her kidneys flushed, they are intravenously pumping 150 to 200 ml of liquids per hour into her. This is double the liquids that a normal human her size might take in orally, so she goes to the bathroom more than usual. Still, the nurses call her The Camel because they've never seen someone take in so much liquid and yet go so long between toilet breaks. Going to the bathroom is an effort though, as it involves disconnecting the telemetry leads from her chest, the Oxygen monitor from her toe, and switching her IV pumps to battery power to make them wheelable to the toilet. Whew!

"White in White, Green in nothing, Black in Red"

After the bathroom break, her three telemetry lead wires need to be re-connected into sockets that don't match their colors. She saw my confusion and recited the quote above... which has become a mantra after each bathroom break. Why don't the colors match? I have no idea.

2 comments:

Anonymous said...

You're forgetting one. "So, Stephanie. How do you feel about me having leukemia? There are plenty of psychiatrists in the building that would love to talk to you."
This was after I had gotten that fortune cookie thing: Control your feelings. Keep 'em under raps."
Yeah, so, that was a good one.
And if you can't guess who I am by now...

rjb said...

Dang, I don't have any good quotes.
I mean, I have good quotes, but not by Mady.
And for those of you who are dumb (I mean, mentally challenged), that was Stephanie who was anonymous.