Passed on from a Mom with a son who has CF from a Dad who's child had ALL: "As the parent in this situation you must do two things, aggressively fight the disease and make the disease as unimportant in your and your child's life as possible."
From a friend: "Whenever you can, find stillness and the opportunity to ask 'What is it that I'm being shown, or that I need to realize right now?' Just listen. There is astonishing strength and love to be gained in this journey, and I know you are already getting it in ways you never wished, for sure, but ways you never imagined either."
Wise Words
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4 comments:
We have REALLY enjoyed reading this blog! It's great to hear the news, and we're glad your treatment is progressing so positively. Our thoughts and prayers are with you, we love you, and GO MADY GO! YOO HOO!
Mady,
We are reading the blog on a daily basis way down here in RI. I don't know what else to say, but we are thinking of you every day! Tell your dad instead of watching the redsox to start working on his next duet for family camp - the last one was pretty darn funny :)
-- The Romes
Mady,
You have been our inspiration to create a McClure Klein Clan blog so that we can chat with you and the rest of the Boston Klein's from here in Austin. We are thinking about you and your sis and your folks a lot right now.
We are reading about your big "learning curve" with ALL and all the feelings that go along with such an unexpected event. Glad to hear that there are snow leopards to fill in a bit of the time, too.
A prayer candle has been added to the mantle to keep your healing journey as a focus for any stray folks who happen by wanting to share loving energy, too.
--Charlotte (Cousin Connor's Ya-Ya)
My way of processing emotion is to talk it out, walk it out, work it out. I have been busy brainstorming how I could best make a contribution to the family.
I have a care package that is heart centered and will let Mady be the one who shares the love. She has such an extraordinary spirt. I had a dream the other night. All Mady did in my dream was just have a complete fit of the giggles. She could not even explain to me why she was laughing so hard. She would just collapse in laughter when i tried to talk to her. My heart was not so heavy after my dream.
We are sending such love,
Donna
P.S. Connor is asleep at this moment but promises to send a non stop string of bad jokes and riddles. He wishes he could send a hug.
Hi it's Jane here in Belmont (Mom of Ginny and Mark), love the blog, thank you so much for being so generous with the information, it really helps all of us out in the world to be so in touch, makes the heart a little lighter. Like Brian and Grandma Helen we say: GO MADY! hugs and kisses. And, GO CHRIS, TREY, and JULIA too. Not to mention WHISKERS.
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