Here's the spreadsheet for the 8-9 week Consolidation phase of Madeline's chemotherapy. She is in her second week. Already her counts have come dramatically down and she will probably be hypo-cellular (too few cells) at the end of it like she was after the Induction phase.
The green represents the drugs that will be given at the Yawkey Outpatient Clinic, the blue, the critical care nurse and the orange, the drugs we have to give her. Since some meds she is only on for a few days a week, like Bactrim that prevents pneumonia, this helps me make sure she is getting the correct drugs on the correct day. Also, there are certain drugs that require an accompanying saline bolus because they can cause so much damage to her major organs. And other drugs that she might have a reaction to, like Peg Aspariginase. If I know when those are scheduled, we can be prepared to spend more time while she is getting the drugs and be more aware of concerning signs.
If everything goes well, that is if Madeline isn't hospitalized, her counts too low to allow for chemo, she has no major drug reactions that would require changing the therapy, then by January first she will be free from this phase and onto the next.
It has been about 2 months since the day of her diagnosis. The first 6-8 months are the most difficult part of this therapy. We had two weeks of respite between the Induction and Consolidation phases and it gives one amnesia to all the pain of the treatment cycle. Now we are back in it and making the best of it. Love, CA
3 comments:
I loved your comment about the amnesia. My thoughts are with you all. Love, Juliet
We're sending our love, buckets and buckets and buckets of love. J,T,F
We are sending our love, too, and continue to pray for the continued strength with which you are meeting this challenge! XXXXOOOOGP&E
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