Sunday, November 18, 2007 - We haven't written in a few days, but it's not because anything is wrong. In fact, it seems like we're in a chemo groove and the routine is getting, well... routine. Mady was quite tired after last Tuesday's treatment at Yawkey Center, but she had enough energy to go to school for a couple of partial days last week. In general, she feels pretty good.
Some of Mady's meds are given to her at home by us (well, by Chris anyway). Most of these are oral, but some are given by hypodermic. While we were still at MGH a few weeks ago, Chris was trained to properly administer shots, and the final exam was injecting herself with sterile water! Tonight I witnessed Chris give Mady a shot of Lovenox, a blood thinner that she needs daily for three weeks following the dreaded (and apparently blood-thickening) PEG-Asparaginase shots.
First Mady picked the spot and put on some numbing creme, then waited for 45-minutes--during which (at least this evening) she fell sound asleep as we watched the Patriots game. Tonight, the hardest part of the entire shot was waking her up and having her point out where she put the anesthetic. Okay, she'd tell you the shot hurt... but only for a second.
Now she's back asleep on the couch as New England routs Buffalo. She will not be happy when I have to wake her up to get her to go to her (much more comfortable) bed. Time out! She just suddently sat up, asked me to turn down the TV volume, and shuffled upstairs to bed. Wow!
Thanks for reading the blog and writing your wonderful comments everyone! Mady reads them all and really enjoys them...
Day 70: No news is good news
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11 comments:
thanks for the update.... I check in all the time to see what's up. Glad to hear it's so uneventful.
Austin Hugs from...
kathy
Mady and family,
Glad to hear you're coping so well with everything. Joanna is always thrilled to see you at school.
Love, the Miltons
So happy to know things are becoming somewhat routine for you. I keep track and share with Mom and Carol. Mady, glad to hear you're able to go to school and be among your friends. Love from the Cerniks.
Much love to you all! Can't wait to see you soon! Love, J,T,F
I'm thank-ful you didn't put a picture of nurse Ratched in there. Love, ca
I hate shots so much that
I cant even read about them!
But i will go back are grind
my way through this posting...
I may even work up the courage to
inject myself with sterilized water.
All this in solidarity with Maddy.
My HERO!
We check in almost every day, and really appreciate getting the info and updates. Glad to know Mady is taking so much in her stride, and maintaining an upbeat attitude. Asparagus and Chris' alter ego are funny! XXXXOOOOCP&E
A wise therapist has written that when you're in the middle of a scary ordeal, it's helpful to focus on the moment you're in, and to realize that you're doing okay in that moment, or at least getting through it.
And if you can get through this moment, then you can get through the next moment. And then the moment after that. Moment by moment, you can do it. And it sounds like you are , Mady.
Always sending good wishes your way, Leslie
Thanks so much for the update.
We love to hear where the "state of Klein" currently is in the state of Mass. ;-)
Gold stars for administering and, more especially, for receiving shots ... of any sort. Wild applause.
Have a wonderful Thanksgiving, too.
Connor and Donna and Charlotte
It's funny...Chris's alter ego and Chris don't look too much alike...
~~Stephanie~~
OK, so I'm real dumb when it comes to this blog stuff and just now figured out that I can add comments here very easily.
I keep up on the news every weekend and am happy to know things are normalizing.
Be well and I'll be in touch more often now that I have a clue-dah!, Laurie Carron
(and Dan Weber-yes, we made it through last summer!)
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