Thursday, January 10, 2008 - Madeline is sitting on her bed at the Yawkey Clinic re-reading a book, being plumped with saline in anticipation of the IV methotextrate today. She will also receive vincristine, intrathecal methotextrate, and tomorrow... the dreaded peg aspariginase, complete with a 3-week round of lovenox... actually, it's more like a 6 week round of lovenox considering she'll have more peg in 3 weeks. We'll have the epi-pen handy tomorrow in case she turns into a hive, and a few musicals on hand so she can practice for her symphonic response to her nightly shot.
Today, we both forgot about not eating before her lumbar puncture procedure but were still given the go-ahead since her 7 am break-fast allowed the requisite 6 hours for her LP at 1:30 pm. We are so glad to be on a Thursday rotation. This allows all of her LP procedures to happen at the Yawkey Center, where they transform one of the examination rooms into a procedure room, complete with anaesthesiologist. On any other day, the procedure takes place either in the same day surgery at MGH or in their new pediatric intensive care unit (very nice), both places where the anaesthesiologist and nurses will be different each week and unknown to Madeline. The Yawkey Clinic is cozy and familiar, and given how scary this has been for all of us, especially Mady, those are excellent qualities.
It will be a long day today. Be Well! Love, Chris
Day 123: Madeline Begins Interim Maintenance
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This is an article in todays New York Times entitiled:
"For Cancer Patients, Empathy Goes a Long Way"
"Research supports the idea that a few kind words from an oncologist — what used to be called bedside manner — can go a long way toward helping people with cancer understand their treatment, stick with it, cope better and maybe even fare better medically."
click on link for entire article..
http://www.nytimes.com/2008/01/08/health/08seco.html
Im no oncologist, but im here to say nice things to help!
so is everyone else!
John
on that note....
A panda walks into a bar, sits down and orders a sandwich.
He eats, pulls out a gun and shoots the waiter dead. As the panda stands up to go, the bartender shouts, "Hey! Where are you going? You just shot my waiter and you didn't pay for the food."
The panda yells back, "Hey, man, I'm a panda. Look it up!"
The bartender opens his dictionary to panda:
"A tree-climbing mammal of Asian origin, characterized by distinct black and white coloring. Eats shoots and leaves."
That was to help pass your long and tiring day!
Great article! That and the goofy joke- they both help!!! Thank-you John. ca
WE LOVE YOU AND ARE SENDING POWER HUGS THROUGHOUT THE DAYS:
G I A N T H U G S
H U G E K I S S E S
! ! ! ! ! ! ! ! ! ! ! ! ! ! ! !
H E A P S O F H E A R T S ,
J,T,F
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