Friday, January 11, 2008 - Madeline and I went to the Yawkey Center again this morning so she could take the "dreaded peg aspariginase," two shots into the muscles of both thighs given at the same time by two nurses. Madeline held my hand and her nurse practitioner, Mary Jo's hand and sang out in an operatic voice, something akin to "AAAAAAHHHHHHHHHHOOOOOUUUUCCCHHHH" hitting a few notes not found in the natural world while her nurse Suzanne and another nurse, Heidi administered the shots. Everyone laughed at Mady's response. After being watched for a few hours in case of a reaction, we were allowed to leave with the assurance that she would be near an epi-pen for the next day.
She has done so well through all of the treatments, even ones that really are unpleasant like today's, that we often get to glimpse stunningly courageous parts of our daughter that bring tears and joy simultaneously. She is now resting on the couch reading, smelly Buttercup is about to be bathed by a very ambitious Julia, and I am about to tackle the "stuff" drawer in our kitchen that is far too "stuffed." Have a great weekend. Love, Chris
Day 124: Peg Aspariginase
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8 comments:
Many thanks again for keeping us updated. We think about you often, and are looking forward to seeing you all again in the future. Send love and blessings from Fla. Lad and Bev
Hi everybody, glad you survived the Friday treatment Miss M, you should consider opera. We love you! See you Monday bright and early!
Jane et al.
Opera is fun!!!It's akin to the primal scream! Wonderful therapy. GP XXXXOOOO
We love you! J,T,F
I DO NOT LIKE ASPARTIGINASE SHOTS!
I DO NOT LIKE THEM IN MY THIGH!
I DO NOT LIKE THEM IN A CLINIC!
I DO NOT LIKE THEM, MY OH MY!
I MUCH PREFER MISS BUTTER CUP,
SHE SMELLS A BIT, BUT SHE'S MY PUP!
The poem above is not lame.
It meters like Seusian fame.
But for comments we ask
(Not to take you to task)...
Please Doctor, tell us your NAME.
(We really like to know who's writing)
Thanks,
Trey
Who implied my poem was lame.
Now Trey demands to know my name.
Dr Seuss? Not enough for you?
Do you need another clue?
Ill spell it out in black and white
Read it quick and get it right.
John James Joseph Jordan the third
is wicked smart that’s what I've heard!
Brilliant poetry creating wide smiles and lots of wild applause for the writers and our favorite opera star in training.
Hugs,
Connor and Donna and Charlotte
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