The high dose of steroids that Madeline took for her first two weeks of protocol caused her endocrine system to temporarily shut down, often requiring daily insulin shots. Following that period, Madeline has had the opposite problem, too little blood sugar. It seems that she does fine during the day, but at night during a long fast her blood sugars drop precipitously.
The doctors even wonder if she has had this all her life when we told them that she gets up at 5:45 every morning to eat breakfast. Yesterday, by 8 am when breakfast was delivered, she showed scary signs of low blood sugar, trembling hands. More doctors visit, and we are given a prescription of one peanut butter and jelly sandwich at 10 pm to see if that will keep her blood sugars normal throughout the night and into the morning. This morning she sleeps until a record 8 am and has a higher blood sugar count than any previous post steroid morning.
Peanut butter happens to be one of Madelines favorite foods (perhaps because it was doing something her body needed?) The best medicine is love, and for Madeline, the second best medicine is peanut butter.
One Medicine Madeline Enjoys
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6 comments:
Adam says, "Ah, yes. The researchers at Joslin have been working on that one for a while. I've often had to whip that out of my armamentarium for hypoglycemic patients. Most insurance covers it."
Yum. I love PB&J sandwiches. At a young age Chris preferred Cream Cheese & Olive sandwiches -- which I thought was very sophisticated but just could quite get excited about.
Martha
Peanut butter is definitely a good medicine, and tastes much better than that awful cherry flavored stuff. Plus they don't inject it into your veins!!! ugh, sticky!! hang in there, time is passing, we love you
j,m,m,g, and mick the dog
Martha, My favorite sandwich still is a cream cheese and green olive sandwich. Personally I don't see much sophistication in it, but I'll take the compliment anyway. Love those pb&j's too. Love, ca
Yay for the PB and J! I'm glad you get a tasty treat for medicine. And I bet that bobka would help keep your blood sugar high, too.
~~Stephanie~~
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