Friday, November 30, 2007 - Madeline is sitting in clinic today getting hydrated for the plethora of meds that kick starts the second half of Consolidation. These are the big bad chemicals that can cause major organ damage, so they require a certain hydration level in her body before and 4 hours of hydration following the drugs to lessen the potential side effects. Given the few hours it has taken to get her specific gravity to the right level and the 4 hours after, it looks like it will be a long day at clinic today. Bagels for dinner.
She has been exhausted lately, hitting the couch at 5:30 and moving upstairs after I give her the Lovenox shot at 9 pm. She has been too tired to go to school for the past week and the nurses mention that her exhaustion may continue for the next few months. She has a terrific tutor, Kim, who works at the middle school during the day and works with Madeline a few times a week in the afternoons. This week I mirror Mady's exhaustion, since our Buttercup has an ear infection and a small bladder, the 12, 2, 4am wake-ups leave me feeling blue all day. We all are looking forward to Treys return tonight<:) Love. ca
Day 82: 2nd half of Consolidation Begins
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8 comments:
Chris, no job description of motherhood would dare include all the special skills you've had to summon to meet Mady's myriad needs and still keep your balance. You are giving a virtuoso performance that earns my highest admiration. All good wishes to your loving family. Prayers continue daily. Martha Smith
I miss my family! I can't wait to get home! Six days is too long. I'm sitting here at gate D16 in Las Vegas--Our red-eye Jet Blue flight has been delayed because the city has had its first rain in a year and the runways are wet...
--Trey
All of you guys are sooo strong. Mady, good job dealing with the big bad chemicals! Chris, good job waking up in the middle of the night to take the dog out to pee. You know, with a small dog like her...I bet you could teach her to use the litterbox... But fear not, if that doesn't work, her bladder will get bigger.
~~Stephanie~~
Chris,
I just read your comment preceding this one. Maybe a non-kid blog would be okay too. The youngsters can read it when they are parents. Then say anything and everything, anytime. You too, Trey
Carlee
it's me again--you know you are always in our thoughts and prayers--this is such a tough time--when my cold goes away i will come by with snow cream, although i guess M. can't eat it, so then I'll bring ice cream instead, if she feels like it. Love, love, Jane and all
Hey..... guys i was away for work pretty much all last week
so I wasnt able to keep up on reading the blog.
martha is absolutly right!
all of you are doing a terrific job
with unimaginable tasks, be it in the name of motherhood, fatherhood, sisterhood and especially Maddyhood.
You are living through a life altering experience and it is not all easy and good.
Please know that you have all our cyber support and cyber love to help you through cyber it!
Stay strong!
Luv ya
JJ
We Love you, Chris and Trey and Mimi and Julia!!!!!!!!J,T,F
Wow - love the pic! Hard to vote on who is cuter - you look great, Mady! Buttercup is a fine addition to the clan. Since she can fit in a carryon bag, maybe she can come visit Heidi someday? :) Heidi has no idea she weighs 100lbs! Love to all, Sarah
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